Thursday, January 7, 2010

Thursday, January 7

We've had a disappointing day. After we heard about Andrew not doing very well, we got ready and headed to the NICU. The doctor gave us updates on all the babies and showed us Andrew and Mattie's x-rays. Andrew had a blood gas that came back bad. His CO2 levels were high, so they did an x-ray to check. His left lung was over inflated and his right was small and murky. When we told you that they were going to purposely deflate his lung, we didn't really know what that meant. It only means that they keep Andrew on his left side, so most of his air intake goes up to his right lung, and his left lung will get smaller. He had another x-ray a few hours later and there was improvement. He was still on quite a bit of oxygen to help him out. They also decided to give him a blood transfusion, which will help his levels to improve. One bright note is that Andrew is off of photo therapy. He's still hovering around 1lb. 14oz., but is getting 8ml of milk every four hours.

Mattie's x-ray showed a small right lung and a murky left lung. She's also getting quite a bit of oxygen to help her. Her feedings are increased to 4ml every four hours, and she's off of photo therapy too. Her blood oxygen levels continue to go up and then go down every few minutes. So, the alarms go off when they're down, they'll stop for a few minutes, and then they go off when she goes too high. These up and down levels, the babies doing good one day and not the next is starting to frustrate us. We know it's a long haul, and we've been prepared for the bad days, but we wish those babies were big and at home. We try to stay as even keel as possible, but it does get hard.

On the very bright side, Adelaide is doing awesome. It's hard to not look at her and wonder why the others are not doing better. She's now taking 24ml of milk every four hours, which is the max for a baby her size. They're discussing taking out her iv line they put in last night since she's feeding so well. She will also be getting fortified formula, which will help her get even bigger. She's now 2lbs. 5oz. They are slowly weening her off her oxygen and hope to challenge her tonight by dropping her levels to see how she handles it.

Kevin's been working at home this week and has a shoot tomorrow, so it will be tough getting back in the swing. Tara had a tough time today with the news about Andrew, and she just wants time to move along faster. She longs to hold those babies and have them home. It will be even tougher as she prepares to go back to work on January 19. Once the babies come home, she'll continue with her leave.

Praise
Adelaide doing so well. Full feeds, weening of vent, and iv line removal.
Andrew and Mattie off of photo therapy.
Andrew slowly improving from this morning.
Dinner being left on our door step. The meals have been an awesome blessing.
A bag of baby supplies left for us by another couple at the NICU.
Work for Kevin.
Sleeping in for Tara.

Prayer
Andrew and Mattie's lungs to inflate to proper size, be clear and functioning correctly.
Andrew's blood gases would improve.
Mattie's monitor levels would improve.
Mattie's feeding would increase.
Kevin's video shoot.
Tara preparing to go back to work.

6 comments:

  1. That Andrew has a lot of cute hair on him. Enjoying the poopy stories and glad for the tender moments you're getting to share with your babies. Still praying for them and their health and you both with all the ups and downs. Love you guys.

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  2. Praying for you all - especially strong lungs for Mattie and Andrew and that you would soon be able to rock each one! Love, Tammi

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  3. Hang in there :) I was right where you two were with only 1 baby in the NICU. After 30 days, I was able to hold mine - still remember the pure joy I felt! I found that keeping a schedule at the NICU was very helpful. The doctors and nurses encouraged me to stay at the NICU for only 4 hours per day, to keep me sane. I used to go from 10 am - 2 pm each day. If they needed me to discuss something or if a problem arose, they called me immediately. Hope this helps...Monica

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  4. Praying for you all! I know the ups and downs and the transitioning to and from work is difficult. Know that when you are away from those babies (and even when you are with them) they are in the Lord's hands and as hard as it may be to believe he loves them more than you do. Thanks for sharing this time with all of us through the blog. You are not alone! Much love...

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  5. What a surprise I had when Kathy called and told me the news...Tara, I didn't even know you were pregnant until I got Aunt Judy's yearly calendar just before Christmas. So, a way delayed congratulations! Let me also say as a once upon a time labor and delivery and peds nurse...remember that as precious as babies are, they are equally resiliant. We will continue to send prayers from Pennsylvania. AND as hard as it must be...take care of yourselves first..so you can continue to care for those three!

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  6. Thank you so much for your blog. I love seeing the pictures and knowing exactly what I need to include in my prayers. Take care of yourselves.
    Debra Collins

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