Friday, January 22

The last two days have been pretty good for the babies. Adelaide is now up to 2lbs. 10oz. She's really starting to fill out and getting baby fat on her. She's on a schedule of 2 hours with the SIPAP mask and 4 hours with the nasal cannula. She's been responding pretty well to this. She has had a couple of bradys, but she works herself back to where she needs to be. Adelaide and Mattie are now taking multi-vitamins too. This is another step forward. Her murmur that was present a couple of weeks ago seems to be gone. Kevin held her in kangaroo care yesterday and could really feel a difference in her size and weight. Adelaide's done a great job on the nasal cannula, and we hope she can continue the progress she's made.

Mattie, our little fighter. has been doing very well. She's up to 2lbs. now. Her carbon dioxide numbers have started to come down, and she's getting weened off oxygen every day. The next step is to get her weened off the ventilator, but Dr. K said that won't happen until she gets a little bigger. The goal is to try her on SIPAP next week. One nurse told us that Mattie really loves her pacifier. Mattie was on her back, both hands around her face, and sucking on the pacifier like it was going out of style.

Andrew has really been calm the past few days. Thanks for praying for him. He had an IV line that they use for sedation in his arm that went bad. It slipped out of his vein and the fluid was going into the tissue in his arm. They removed that line and put one in his head. It looks awful, but they do this a lot with babies. Mattie had one a couple of weeks ago. Since he received the new line, he's been pretty calm. It could also be that his steroids have left his body. The doctor is talking about a longer steroid treatment some time soon. It took him a long time to recover from being put back on the Jet after the attempt at the conventional ventilator. His numbers are looking better, and his carbon dioxide has come down as well. He's gaining weight too. He's now 2lbs. 6oz. The doctor says that he's still not the best of the three. He really needs to get off the ventilator and start to breathe on his own, but he has been stable for the past couple of days.

Praise
Weight gain for all three.
Visual changes in all three (we can see them getting bigger).
Our sister-in-law's biopsy went very well. Results are next week.
Adelaide doing well on nasal cannula.
Mattie's and Andrew's numbers improving.
Andrew being calm.

Prayer
Continued weight gain and strength. Especially for Andrew. The only way to get his lungs better is for growth.
Our sister-in-law's biopsy report would be a good report.
Adelaide would get stronger on the nasal cannula.
Mattie would be weened off the ventilator.
Andrew would be weened off the Jet.
Protection over the babies for any long term issues due to the ventilators and medication.