The roller coaster continues, but we are learning to celebrate the good news and expect the bad news. We were absolutely thrilled to find out about the ultrasound results for Adelaide and Andrew. We went down to the NICU to see them this afternoon and noticed that Adelaide's photo therapy is no longer there. Her jaundice levels have gone down, but it doesn't mean they won't come back. While we were there Andrew decided to pull apart his air hose, so all kinds of alarms were going off. The nurse was right there to figure out what he did and reconnected the hose. He seems to get really agitated, so they try to sedate him a lot. Kevin thinks he's got the Peet temper.
The bad news for the day is that Andrew's murmur hasn't improved, so they're putting him on medication to close the valve in his heart. The medication that Mattie is taking is currently on short supply, so Andrew had to take an alternative that he's given three doses every 24 hours. He's going to be taken off Tara's milk while on the meds, so he had a good long run on the milk. Mattie is having another echo cardio gram tomorrow morning to see how her three doses of meds has worked on the valve. She could always get another round if needed.
We're still feeling pretty good about everything despite the news about Andrew. We know God's in control and that He loves those babies more than we do. We pray that through their lives and their stories that God would be glorified.
Tara got discharged today, but we're staying one more night on a courtesy visit. The hospital told us we could most likely stay through the weekend, but at some point we need to get home and get into a normal routine in visiting the babies.
Praise
Adelaide off the photo therapy.
Constant good results on the blood gases.
The babies have graduated to major blood tests on Monday, Wednesday and Fridays and CBCs on Mondays only.
They passed the critical 96 hour mark.
The normal results on all of their ultrasounds. (THIS IS HUGE)
Kevin and Tara having dinner together outside of the room. It was in the cafeteria, but hey, it wasn't sitting in bed.
Kevin and Tara taking a short trip to Target.
Prayer
A good result of Mattie's echo cardio gram tomorrow morning and that her valve is closed.
Protection over Andrew while he's on the three day medication.
That Andrew's valve would close.
Weight gain for them all.
For Tara as she heads home for the first time tomorrow.
Subscribe to:
Post Comments (Atom)
Happy with this good news and grateful for all progress and praise! Love you 5!/Kathy B
ReplyDeleteKevin and Tara,
ReplyDeleteI am so glad you are posting this blog. Three and one half years ago, my cousin delivered her twins prematurely at barely 27 weeks. But now you would never know it! Both babies are feisty three-year-olds who continue to amaze us all. You can read about their first year of life at adamandgrant.blogspot.com. My thoughts and prayers are with you daily. Please keep posting! -Angie
Kevin and Tara,
ReplyDeleteWe are praying for you! Love, Brian and Lydia Smith
We are SO glad you guys got to have a "date". Please let us know if we can do anything - praying for the transition to home.
ReplyDeleteKevin and Tara -
ReplyDeleteYou two and the babies have been at the top of
my prayer list morning and evening! I am soooo
happy that the news continues to be good.
I love all of you and wish you the best and brightest Christmas!
Thank you so much for keeping all of us informed through this blog.
Love you lots and lots!
Kathy