We had a Care Conference yesterday, and the staff at Our Children's House have pushed Andrew's tentative release date out to July 6. He's not as far along as they had hoped he would be, and his ventilator settings are still too high. While we're a little frustrated of having two more weeks added, we're thankful that Andrew will have more time to grow and get stronger before coming home. We certainly wouldn't want him to come home before he's ready. They have weaned him a little off the ventilator last night and will have a blood gas to see if his numbers will change. He also had some bacteria in his trach that they're treating with antibiotics and an infection in his g-tube area that is starting to clear after antibiotics. He weighs a little over 9lbs.
The girls are still doing good. We're trying a few different techniques to help Adelaide while she's feeding. Some days she takes her minimum, and other days she really struggles. We'd like her to be more consistent, so her doctor suggested a few things to try. The Nexium medicine that she's on seems to be working for her acid reflux. She arches her back and cries less frequently while eating. Adelaide and Mattie are starting to smile more and more each day. It's a great feeling to walk up to them in their crib, and they look up and start grinning really big.
Praise
The girls acid reflux is less.
Andrew's infection has started to go away.
Andrew is starting to get weaned off the ventilator.
Mattie takes her bottle consistently.
Prayer
The new techniques for feeding Adelaide would work, and she would take her minimum for each feed.
Strength for Kevin and Tara as we travel to Dallas each day to visit Andrew. Help us to remember the goal.
All the details of Andrew coming home (training and using the equipment, finding a home healthcare service, preparing his room and rearranging the home) would go smoothly.
Growth and strength for all the babies.
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Continuing to pray for you. I know waiting until July 6 is a disappointment, but trust that God has a greater plan in all this. It is so good to see the progress that all of the babies are making. Hang in there. God is good! Debra Collins
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