Last time we posted, Andrew had been moved to the home vent. It was all good; however, as the week finished Andrew's co2 had risen and his lungs began to get murky again. They changed his pressure and rates and so far he seems to have responded well. The pulmonologist is strongly suggesting another surgery called a nissan. Our other option would be to extend the g-tube into the duodenum, so food could bypass the stomach and go straight into his intestine. This would help his acid reflux to stay out of his lungs. There are problems with both options, but the extension on the g-tube seems better to us because he won't suffer the long term effects a nissan would bring. Andrew's.co2 needs to continue to drop in order for him to be moved to Our Children's House. Tomorrow the doctors will be re-evaluating him to come up with the next step in this journey.
Andrew continues to charm the nurses and doctors. He is very aware of his surroundings and continues to "suck the green off" his pacifier. (This term was coined by a friend/RT at Grapevine). He weighs 7 lbs. 6 oz.
Mattie and Adelaide are doing really well. They become more alert everyday. They are also taking more notice of each other. They crack us up when we put them in the play pen. They kind of slide into each other and play touch-me-not games. Mattie also has an eye on Adelaide's giraffe wubbanub. I'm sure this will get a rise out of Adelaide when she is older.
We bought a digital scale a couple of days ago and we think Adelaide is 10 lbs. And Mattie weighs at least 8 lbs. We love to watch all three of them grow.
Praises
Watching the girls in their play pen in hopes of them holding hands.
Modern technology and medication, doctors and nurses who have helped and loved on our babies.
The future that Our Children's House brings - it means one step closer to getting Andrew home.
Prayers
Andrew's blood gas and lab work would look really good in the morning and would continue to look good.
God would give Kevin and Tara discernment as to Andrew' s next step for treatment.
The doctors would have good judgment concerning Andrew.
Kevin and Tara would have peace about the future.
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May God continue to watch over all of you. Praying He will give you the wisdom you need.
ReplyDeleteDebra Collins
Spare time for blogging is probably rare for you all, but I really love reading about the progress of the kids! We still think about & talk about your family often. Thanks for posting!
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