Sunday, February 13, 2011

Peek-a-boo

The girls have now learned to peek-a-boo together at the dinner table. We had a good chuckle, and we hope you do too.

Tuesday, January 11, 2011

Tuesday, January 11

We hope everyone had a Merry Christmas and a Happy New Year. We've missed blogging and keeping everyone updated. It's been over a month since our last blog - again. It's so hard finding the time between feeds, changing diapers, playing, wrangling, and work. The holidays were pretty busy for us and not what we had anticipated. We hope next year will be less hectic on Christmas Day, but more about that to follow. Get ready for a long read because we have a lot to type to catch you up.


At the beginning of December, the state weaned our hours for nurse care since Andrew was on the ventilator for only 12 hours a day. We talked about how to wean the hours and since Tara's been tutoring in the evenings, we thought it would be good to wean a few hours in the early morning and all day on Saturday. Tara gets up at 5:00 to watch Andrew until 7:00. The girls typically wake up around 7:30, so the plan works on most days. Kevin helps if they get up early and watches them while Tara grabs a quick shower before starting her day with the girls. The first few Saturdays of taking care of Andrew on our own was overwhelming and frustrating. We have had to adapt our schedules, so one person isn't caring for him for too long at one time. Andrew is very active and has special treatments and needs that require constant attention. He's also on a schedule for all of his treatments, so if one thing goes wrong, it can get pretty frustrating. We're thankful that the last two Saturdays have been great with our new schedule.

We had photos taken for a Christmas Card and to hang on our walls to celebrate their first year. Our friend at jmphotoimages.com donated her time for the session and gave us free prints of the pictures. We want to thank her for doing a wonderful job and for being so generous. You can see some of the pictures on previous posts on the blog.

On December 18th, we celebrated the babies' first birthday. We only had our family over for a party to limit the amount of people due to the cold and flu season. Unfortunately, Tara's parents and brother-in-law both had colds and weren't able to attend. Tara's mom did make the cake and cupcakes for the babies. The theme was Little Blue Truck, which is one of their favorite books. Each baby had a cupcake to smoosh between their fingers. This was the first sweets that they've ever tasted. Their diet has been formula, cereal, fruits, and vegetables. Adelaide and Mattie took to the cupcakes, and Mattie was the first to discover how good sugar is. It was hilarious watching them lick their fingers and smear blue icing all over their faces. Andrew was less interested and got overwhelmed with all the attention from people watching him. He ended up falling asleep in his high chair after crying for awhile. The babies received awesome toys for learning. They have Discovery Toys, Little Einstein, V-tech, and Leap Frog toys that will help them develop.

Christmas Day was not what we had envisioned and anticipated, but the afternoon was much better than the morning. We were caring for Andrew that day, and thankfully had a nurse that was willing to come in and help us in the afternoon. The whole family had been fighting colds and little sleep for the week leading up to Christmas, which added to the frustration of the day. Andrew had come down with a cold and was on increased treatments and medicine. It seemed like he had something every hour that had to be done. We had a thirty minute window to open presents before Andrew had a treatment, so that was really rushed. When the nurse arrived, it seem to calm down. It's very helpful having a third person to help. We gathered up the babies and headed to Kevin's parent's house for Christmas dinner and to open presents with his family. We had a great time despite being tired and fatigued.

Miss Adelaide - Adelaide is the one we have to wrangle the most. She's still crawling all over the place and goes on the most "adventures". We'll find her down the hall or standing at the gate that leads to Andrew's room crying for him to come out to play. To tell the truth, she really wants in his room to explore. Adelaide and Mattie love to talk and giggle to each other. She pulls herself up to a standing position and has taken a few steps. She has four teeth total with two more on the way. She's just under 20lbs.

Mattie Jane - Mattie got her helmet off just before Christmas, and she looks beautiful. Her head shaped very nicely, and her face changed as well. Mattie was the last to crawl, and for awhile, we were worried that she wouldn't. Recently, she's been crawling to the gate at Andrew's room or down the hall to the nursery. The other evening, Kevin was watching the girls while Tara tutored. Adelaide had crawled between our love seat and sofa, behind the love seat and then to the gate leading into the kitchen. Mattie decided to follow, but she was delayed halfway on the trip. We keep several of their toys in bins behind the love seat. She stopped to play and pull things out. When Tara came home, she asked, "Where's my Mattie?". Kevin told her Mattie had gone on a "walkabout". Suddenly, Mattie started to giggle from behind the love seat. It was such a neat feeling to have her moving around. Mattie weighs around 18lbs.

Andrew - Andrew had a check up before he got sick, and the doctor wanted to wean him even further off the ventilator to 16 hours. After discovering that Andrew had only gained 1lb. in two months due to the calories he burns trying to breathe on his own and being so active, Tara asked the doctor to wait on the weaning and keep him at 12 hours. She wanted him to gain weight first, knowing that he would probably lose weight being off for 16 hours. Well, Andrew gained 1lb. in 3 weeks. His cold did slow him down, and we're thankful that he wasn't on the 16 hour wean when the cold hit. It could have been very hard on him. He's doing a better job of holding his feeds down, but the added mucus he has doesn't sit well on his stomach. He's thrown up just mucus on several occasions. We have a speech therapist that works with Andrew a couple of times a week. He is much more vocal now, and we can hear him make noise even when on the ventilator. It's a sweet sound. Andrew is close to 15lbs.

Praises
Our babies are a year old.
Mattie is crawling.
Adelaide and Mattie, and their games of peek-a-boo.
Strong, healthy, and thriving babies.
Andrew's voice.

Prayer
Sleep and comfort for teething babies.
Protection during cold and flu season.
Sleep and rest for Kevin and Tara.
A full time job with benefits for Kevin.
The clearing of the mucus that Andrew still has.
Growth for Andrew.

Birthday Party Pictures











Birthday Party Pictures










Christmas Card Pictures
















Here are some more photos.

Christmas Card Pictures
















Here are a few shots from our photo session for our Christmas card. Thanks to jmphotoimages.com for donating her time and doing an awesome job.

Monday, November 29, 2010

We hope everyone had a wonderful Thanksgiving. We were able to celebrate over at Tara's parent's with all three babies in tow. Kevin's mom was going to host our family, but she came down sick the day before. Our nurse for the day was able to get Andrew ready by 10:30. It was a great day with family and time for us to be thankful for our many blessings. We're thankful every day, but it was good to think back over the past year.

Our babies are now 11 months old, and boy are they changing every day. There's so much going on with them that Kevin's been compiling a list to share.

Adelaide now has two teeth on her bottom and working on one or two on the top. We have several toys that play music, and Adelaide loves to bounce and bob her head when the music comes on. She seems to be the most musically inclined. She also crawls all over the place. Adelaide loves to crawl into Andrew's room, so we've put a gate up because of all the equipment in his room. She also enjoys crawling on us as we sit with them on the floor, which she's doing right now as we're typing. A few weeks ago, she weighed in at 17lbs. 9oz.

Mattie is doing very well with her helmet. Her head is shaping up nicely, and we anticipate it coming off at the end of December. Mattie is very thoughtful and observing. She's a watcher for sure. Mattie just got her first tooth. She was the last to cut one. She hasn't crawled on her own yet. We give her assistance by placing our hands behind her feet to give her something to push off. She can roll to toys on the floor, but we're working with her on the crawling. Mattie says mama very well. She likes to say it while crying when Tara leaves the room. Adelaide is also saying mama. Mattie weighed 16lbs. 8oz. a few weeks ago.

Andrew is doing very well. He's off the ventilator for 12 hours a day now. He has required oxygen while sleeping at night, so we're monitoring him and may need to go back to 10 hours off the ventilator. The big news is that Andrew has four teeth. He's got two bucky beavers up top that are so cute. He doesn't crawl as much as Adelaide, but his crawling is better. He can move around on hands and knees, goes from stomach to sitting up, and pulls himself up to standing position. We're guessing that he'll be the first to walk. Andrew still smiles the biggest smiles you've ever seen, and has a great disposition. He's been working with a Speech Therapist, and we've heard his voice several times through a speaking valve. He's even speaking through his trach as well. Andrew weighed 13lbs. 4oz. last week.

We recently took family photos to celebrate the babies first birthday and to use as a Christmas card. We're having a hard time deciding which one to use. We shot them at the Botanic Gardens, and they turned out wonderful. Keep an eye on the blog for future postings.

For a little fun, we gave the babies American Indian names in the spirit of Dances with Wolves. Adelaide (Voice like Thunder) Mattie (Stares at Face) and Andrew (Crawls like Worm).

Praise
The babies growth and development.
Andrew weaning off the ventilator.
The babies saying "mama".
God's provision for our family.
Crawling babies.

Prayer
Andrew's lungs would continue to strengthen.
Andrew would gain weight and strength.
Mattie would crawl.
Our nursing staff has been a little depleted. Please pray for qualified nurses.
For peace and joy in our house.
Kevin's still searching for a staff position. Please pray that the right job would come.