Monday, May 10, 2010

Andrew to Our Children's House

We got word that a bed opened up this afternoon. Andrew will be transported to Our Children's House from 10-11. Please pray for a smooth ride.

Monday, May 10

We hope everyone had a great Mother's Day. We spent ours at the NICU visiting Andrew, taking a quick nap when we got home, and taking the girls to Kevin's parent's house for dinner. Thanks to Kevin's brother, sister-in-law, and niece for watching the girls while we went to Dallas.

We found out on Friday that Andrew is waiting for a bed to open at Our Children's House. The coordinator is visiting with him today, and we hope something opens in the next few days. Andrew's carbon dioxide levels have come up a little, but they're still in an acceptable range. He continues to need oxygen in the 20's, which is awesome. The nurses snapped some great pictures of him on Friday and made Mother's Day cards for Tara. He's really photogenic. We also had a nice surprise on Saturday. One of Andrew's nurses from Grapevine called and asked to baby sit the girls for us. It was a great surprise and gave our moms the weekend off. We were able to go see Andrew and have an early Mother's Day date night.

The girls are doing ok, but still suffer from acid reflux. They're going back to arching their backs, crying, and sputtering their milk when we feed them. The increase of Prevacid worked for a couple of days, but now we'll be calling the Pedi again. They continue to gain weight and strength. Mattie has a re-check appointment on Tuesday. Her calcium levels were high last time, so they decreased one of her meds. We're also taking the girls to Our Children's House - Grapevine on Friday for an evaluation for therapies.

Praise
For great moms.
For first time moms.
Andrew still doing good with no setbacks.

Prayer
A bed would open up for Andrew.
The girls' acid reflux would decrease, and they would be comfortable.

Thursday, May 6, 2010

Thursday, May 6

We got a call from the neonatologist this morning, and he had spoken to the pulmonologist, who is following Andrew's case. He will also be seeing him at Our Children's House. He was very pleased with Andrew's progress and how he responded to being put on the home vent. His x-rays looked pretty good and his carbon dioxide level was 50. They want to wean him a little off the ventilator and re-check his carbon dioxide tomorrow, but they are planning to move him to Our Children's House on Monday. We are overcome with joy and actually danced when we heard the news. It will still be several more weeks of being at Our Children's House, but Andrew is one step closer to coming home.

Wednesday, May 5, 2010

Wednesday, May 5

We've had a really good week since Andrew's surgery. He is improving daily, and we've seen some numbers that we've never seen. Andrew's carbon dioxide levels were 42 on Monday and 48 today. This is unbelievable. His oxygen needs have dropped to the 30's and last night he was actually at 21% for some time last night. He looks awesome too. His color is great, and he has seemed very comfortable. He is off the morphine and is getting his staples taken out today. He got moved to the. home vent today as well, and when we arrived his oxygen was 23 percent. We hope the move to the home vent is his final step to discharge from the hospital and over to Our Children's House. He had an x-ray last week, and we could actually see his heart. Instead of cloudy white, his lungs were dark and relatively clear.

The girls are doing good. They had some issues this weekend with feeding. They were both crying and arching their backs when we fed them. We thought it was frozen milk until they did it with fresh milk too. Our pediatrician increased their Prevacid, and they are doing much better. Mattie took a bottle for Kevin in 13 minutes today. They are both becoming more alert during the day, which is a lot of fun. Tara and her mom took the girls to the backyard yesterday and put them in their pack-n-play under a tree. The girls loved it.

Tara had a really rough Monday with the girls when they were still having acid reflux issues. After she fed Adelaide, she was holding her when Adelaide threw up all over Tara. Kevin was at home, but about to leave for work. He helped grab burp clothes and a clean shirt, but it threw the whole day off. Tara had puke in her hair the rest of the day. Mattie decide to pile on to her mom's pain by also throwing up on her at the end of the day. We thought everyone would enjoy a throw up story since we've shared so many poop stories.

Praise
Andrew's unbelievable progress.
Tara's mom staying with us overnight and giving us rest.
Both of our moms helping daily while we go to Dallas.
Adelaide and Mattie feeling better with the increase of Prevacid.
Andrew's last eye exam went great. The doctor doesn't want to see him for a year.
The meals keep coming. Thank you all.

Prayers
Andrew would have a good x-ray and blood gas now that he's on the home vent.
Kevin and Tara can work on their schedules.
Continued weight gain and growth.